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"Why Do We Have to Fight so Hard?": Examining the Role of Parents as Policy Agents Within Special Education
"Why Do We Have to Fight so Hard?": Examining the Role of Parents as Policy Agents Within ...
"Why Do We Have to Fight so Hard?": Examining the Role of Parents as Policy Agents Within Special Education

상세정보

자료유형  
 학위논문 서양
최종처리일시  
20250211152721
ISBN  
9798384019664
DDC  
379
저자명  
Cowhy, Jennifer R.
서명/저자  
Why Do We Have to Fight so Hard?: Examining the Role of Parents as Policy Agents Within Special Education
발행사항  
[Sl] : Northwestern University, 2024
발행사항  
Ann Arbor : ProQuest Dissertations & Theses, 2024
형태사항  
240 p
주기사항  
Source: Dissertations Abstracts International, Volume: 86-02, Section: A.
주기사항  
Advisor: Coburn, Cynthia E.
학위논문주기  
Thesis (Ph.D.)--Northwestern University, 2024.
초록/해제  
요약Federal special education law stipulates that all children in the United States are entitled to receive a free, appropriate, and public education, regardless of their disability. Yet, research consistently documents injustices in the law's implementation, including racial disproportionalities. In my dissertation, I interrogate how the law itself puts a great deal of responsibility onto parents for the law's implementation and how parents are differentially positioned to take on this work. Drawing on scholarship from multiple disciplines, my dissertation addresses the puzzle: Why do parents-not educators or school systems-bear the responsibility to understand and enforce special education policy? Under what conditions? And, with what consequences? I address these questions in separate three studies. Study 1 is an interview study with a racially and socioeconomically diverse group of 60 parents from across the US. In this study, I challenge the extant literature on special education policy implementation and enforcement by and reframing parents as policy actors, given the role parents play in monitoring and guiding special education policy implementation for their children. This study explores how parents described working as policy agents within special education and how parental resources shaped their experiences. I found that all parents described working to initiate, develop, and enforce their children's rights and that parents' economic, cultural, and social resources-as well as their access to whiteness-did shape parents' experiences navigating special education, though not always in straightforward ways. For example, while parents' with more social, cultural, and economic resources could access greater supports outside of their child's school districts, few parents in my sample believed their children had what they needed from their schools, regardless of background. In Study 2, I utilize the same interview sample to better understand the costs and burdens that parents experience as they work to monitor and enforce their child's rights within special education. I found that all parents experienced numerous costs; however, parents of color and white parents of children of color reported experiencing additional racialized burdens. I also found that the nature of the law-one that cuts across different aspects of society, including education, health care, and law-creates additional burdens for families as they often work alone in navigating all spaces for their child. In Study 3, I try to understand how this policy design developed by focusing on how parents' roles came to be and how, if at all, they have changed over time. I found that within federal law, parents' roles within the legislation were initially constructed in three ways: parents as targets, partners, and policy agents. These constructed roles have largely held over time and despite the concerns raised within Congressional hearings. Over time, Congress has made slight alternations to the construction of parents' roles, which has simultaneously acknowledged concerns raised and further instantiated parents' roles, especially as policy agents. By reframing parents as policy actors in special education, this dissertation helps illuminate how the design of the law is one mechanism that contributes to long-observed inequities within special education implementation.
일반주제명  
Education policy
일반주제명  
Special education
일반주제명  
Individual & family studies
일반주제명  
Educational sociology
키워드  
Administrative burdens
키워드  
Parental capital
키워드  
Parents and families
키워드  
Policy implementation
키워드  
Special education policy
기타저자  
Northwestern University Human Development and Social Policy
기본자료저록  
Dissertations Abstracts International. 86-02A.
전자적 위치 및 접속  
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MARC

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■24510▼a"Why  Do  We  Have  to  Fight  so  Hard?":  Examining  the  Role  of  Parents  as  Policy  Agents  Within  Special  Education
■260    ▼a[Sl]▼bNorthwestern  University▼c2024
■260  1▼aAnn  Arbor▼bProQuest  Dissertations  &  Theses▼c2024
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■500    ▼aSource:  Dissertations  Abstracts  International,  Volume:  86-02,  Section:  A.
■500    ▼aAdvisor:  Coburn,  Cynthia  E.
■5021  ▼aThesis  (Ph.D.)--Northwestern  University,  2024.
■520    ▼aFederal  special  education  law  stipulates  that  all  children  in  the  United  States  are  entitled  to  receive  a  free,  appropriate,  and  public  education,  regardless  of  their  disability.  Yet,  research  consistently  documents  injustices  in  the  law's  implementation,  including  racial  disproportionalities.  In  my  dissertation,  I  interrogate  how  the  law  itself  puts  a  great  deal  of  responsibility  onto  parents  for  the  law's  implementation  and  how  parents  are  differentially  positioned  to  take  on  this  work.  Drawing  on  scholarship  from  multiple  disciplines,  my  dissertation  addresses  the  puzzle:  Why  do  parents-not  educators  or  school  systems-bear  the  responsibility  to  understand  and  enforce  special  education  policy?  Under  what  conditions?  And,  with  what  consequences?  I  address  these  questions  in  separate  three  studies.  Study  1  is  an  interview  study  with  a  racially  and  socioeconomically  diverse  group  of  60  parents  from  across  the  US.  In  this  study,  I  challenge  the  extant  literature  on  special  education  policy  implementation  and  enforcement  by  and  reframing  parents  as  policy  actors,  given  the  role  parents  play  in  monitoring  and  guiding  special  education  policy  implementation  for  their  children.  This  study  explores  how  parents  described  working  as  policy  agents  within  special  education  and  how  parental  resources  shaped  their  experiences.  I  found  that  all  parents  described  working  to  initiate,  develop,  and  enforce  their  children's  rights  and  that  parents'  economic,  cultural,  and  social  resources-as  well  as  their  access  to  whiteness-did  shape  parents'  experiences  navigating  special  education,  though  not  always  in  straightforward  ways.  For  example,  while  parents'  with  more  social,  cultural,  and  economic  resources  could  access  greater  supports  outside  of  their  child's  school  districts,  few  parents  in  my  sample  believed  their  children  had  what  they  needed  from  their  schools,  regardless  of  background.  In  Study  2,  I  utilize  the  same  interview  sample  to  better  understand  the  costs  and  burdens  that  parents  experience  as  they  work  to  monitor  and  enforce  their  child's  rights  within  special  education.  I  found  that  all  parents  experienced  numerous  costs;  however,  parents  of  color  and  white  parents  of  children  of  color  reported  experiencing  additional  racialized  burdens.  I  also  found  that  the  nature  of  the  law-one  that  cuts  across  different  aspects  of  society,  including  education,  health  care,  and  law-creates  additional  burdens  for  families  as  they  often  work  alone  in  navigating  all  spaces  for  their  child.  In  Study  3,  I  try  to  understand  how  this  policy  design  developed  by  focusing  on  how  parents'  roles  came  to  be  and  how,  if  at  all,  they  have  changed  over  time.  I  found  that  within  federal  law,  parents'  roles  within  the  legislation  were  initially  constructed  in  three  ways:  parents  as  targets,  partners,  and  policy  agents.  These  constructed  roles  have  largely  held  over  time  and  despite  the  concerns  raised  within  Congressional  hearings.  Over  time,  Congress  has  made  slight  alternations  to  the  construction  of  parents'  roles,  which  has  simultaneously  acknowledged  concerns  raised  and  further  instantiated  parents'  roles,  especially  as  policy  agents.  By  reframing  parents  as  policy  actors  in  special  education,  this  dissertation  helps  illuminate  how  the  design  of  the  law  is  one  mechanism  that  contributes  to  long-observed  inequities  within  special  education  implementation.
■590    ▼aSchool  code:  0163.
■650  4▼aEducation  policy
■650  4▼aSpecial  education
■650  4▼aIndividual  &  family  studies
■650  4▼aEducational  sociology
■653    ▼aAdministrative  burdens
■653    ▼aParental  capital
■653    ▼aParents  and  families
■653    ▼aPolicy  implementation
■653    ▼aSpecial  education  policy
■690    ▼a0458
■690    ▼a0529
■690    ▼a0628
■690    ▼a0340
■71020▼aNorthwestern  University▼bHuman  Development  and  Social  Policy.
■7730  ▼tDissertations  Abstracts  International▼g86-02A.
■790    ▼a0163
■791    ▼aPh.D.
■792    ▼a2024
■793    ▼aEnglish
■85640▼uhttp://www.riss.kr/pdu/ddodLink.do?id=T17163533▼nKERIS▼z이  자료의  원문은  한국교육학술정보원에서  제공합니다.

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