서브메뉴
검색
Immaculate Re-Conception: Redefining Health and Reproductive Risk Using Prenatal Genetic Testing
Immaculate Re-Conception: Redefining Health and Reproductive Risk Using Prenatal Genetic Testing
상세정보
- 자료유형
- 학위논문 서양
- 최종처리일시
- 20250211150942
- ISBN
- 9798384447023
- DDC
- 301
- 서명/저자
- Immaculate Re-Conception: Redefining Health and Reproductive Risk Using Prenatal Genetic Testing
- 발행사항
- [Sl] : University of California, Berkeley, 2024
- 발행사항
- Ann Arbor : ProQuest Dissertations & Theses, 2024
- 형태사항
- 199 p
- 주기사항
- Source: Dissertations Abstracts International, Volume: 86-04, Section: B.
- 주기사항
- Advisor: Ray, Raka.
- 학위논문주기
- Thesis (Ph.D.)--University of California, Berkeley, 2024.
- 초록/해제
- 요약This dissertation explores the routinization of prenatal genetic testing in the United States' precision medicine landscape. It investigates how these technologies shape perspectives on reproduction, health, and disability, and probes the ethical implications of their widespread use. I ask, how does the "appropriate" use of prenatal genetic technologies come to frame certain existences as meaningful and worthwhile while others are seen as unwanted and less valuable? I also explore the role of experts in both implementing and interpreting these technologies during medical research as well as patientcare. The study reveals how the routine use of prenatal genetic technologies positions disability as an undesirable social harm, narrowing our tolerance of difference and amplifying the imperative to use these tools to reproduce 'judiciously.'The first empirical chapter delves into Wrongful Birth and Life legal disputes in prenatal testing. It reveals how courts have ushered the technological imperative around prenatal genetic tools and enshrined disability as an unwanted private burden. In the second, I unpack the social making of genetic diagnostic categories. Focusing on sex chromosome aneuploidies, this chapter offers an in-depth examination of gendered pathology and the medicalization of genetic variations as 'abnormal' existences. The final empirical chapter centers on experts and expertise. It illuminates how reproductive physicians and genetic counselors organize expertise and responsibilities around prenatal testing, emphasizing possible transformations in which groups are influencing the forefront of genomics and equitable patientcare.I employ mixed qualitative methods. I conducted in-depth interviews (20 with reproductive physicians, 20 with genetic counselors, and 20 with patients). Further, I completed ethnographic observations at professional genomics conferences, a genetic counseling master's program, and consultations between patients and genetic counselors. I also relied on content analysis, using a Python-assisted web scraper to gather text-based exchanges about prenatal genetic testing on Reddit. Finally, I conducted archival research on Wrongful Birth and Life cases from 1963-2021.There are significant consequences surrounding genetic technologies, systematic de-selection of disability, reproductive pressures, and the enduring history of eugenics. As prenatal genetic innovations become more precise, capable, and accessible, it is essential to implement them toward a more inclusive and just society. To be sure, prenatal genetic testing is not inherently harmful; rather, harms result from how we systematically employ these tools to treat disability as objectively unwanted. In that vein, this dissertation is an endeavor to pave the way for a more equitable and compassionate future in prenatal testing, where inclusive social infrastructures parallel technological innovation.
- 일반주제명
- Sociology
- 일반주제명
- Medical ethics
- 일반주제명
- Gender studies
- 일반주제명
- Counseling psychology
- 일반주제명
- Disability studies
- 키워드
- Disability
- 키워드
- Experts
- 키워드
- Gender
- 키워드
- Prenatal testing
- 키워드
- Reproduction
- 기타저자
- University of California, Berkeley Sociology
- 기본자료저록
- Dissertations Abstracts International. 86-04B.
- 전자적 위치 및 접속
- 로그인 후 원문을 볼 수 있습니다.
MARC
008250123s2024 us c eng d■001000017160249
■00520250211150942
■006m o d
■007cr#unu||||||||
■020 ▼a9798384447023
■035 ▼a(MiAaPQ)AAI30992036
■040 ▼aMiAaPQ▼cMiAaPQ
■0820 ▼a301
■1001 ▼aMukherjee, Meghna.
■24510▼aImmaculate Re-Conception: Redefining Health and Reproductive Risk Using Prenatal Genetic Testing
■260 ▼a[Sl]▼bUniversity of California, Berkeley▼c2024
■260 1▼aAnn Arbor▼bProQuest Dissertations & Theses▼c2024
■300 ▼a199 p
■500 ▼aSource: Dissertations Abstracts International, Volume: 86-04, Section: B.
■500 ▼aAdvisor: Ray, Raka.
■5021 ▼aThesis (Ph.D.)--University of California, Berkeley, 2024.
■520 ▼aThis dissertation explores the routinization of prenatal genetic testing in the United States' precision medicine landscape. It investigates how these technologies shape perspectives on reproduction, health, and disability, and probes the ethical implications of their widespread use. I ask, how does the "appropriate" use of prenatal genetic technologies come to frame certain existences as meaningful and worthwhile while others are seen as unwanted and less valuable? I also explore the role of experts in both implementing and interpreting these technologies during medical research as well as patientcare. The study reveals how the routine use of prenatal genetic technologies positions disability as an undesirable social harm, narrowing our tolerance of difference and amplifying the imperative to use these tools to reproduce 'judiciously.'The first empirical chapter delves into Wrongful Birth and Life legal disputes in prenatal testing. It reveals how courts have ushered the technological imperative around prenatal genetic tools and enshrined disability as an unwanted private burden. In the second, I unpack the social making of genetic diagnostic categories. Focusing on sex chromosome aneuploidies, this chapter offers an in-depth examination of gendered pathology and the medicalization of genetic variations as 'abnormal' existences. The final empirical chapter centers on experts and expertise. It illuminates how reproductive physicians and genetic counselors organize expertise and responsibilities around prenatal testing, emphasizing possible transformations in which groups are influencing the forefront of genomics and equitable patientcare.I employ mixed qualitative methods. I conducted in-depth interviews (20 with reproductive physicians, 20 with genetic counselors, and 20 with patients). Further, I completed ethnographic observations at professional genomics conferences, a genetic counseling master's program, and consultations between patients and genetic counselors. I also relied on content analysis, using a Python-assisted web scraper to gather text-based exchanges about prenatal genetic testing on Reddit. Finally, I conducted archival research on Wrongful Birth and Life cases from 1963-2021.There are significant consequences surrounding genetic technologies, systematic de-selection of disability, reproductive pressures, and the enduring history of eugenics. As prenatal genetic innovations become more precise, capable, and accessible, it is essential to implement them toward a more inclusive and just society. To be sure, prenatal genetic testing is not inherently harmful; rather, harms result from how we systematically employ these tools to treat disability as objectively unwanted. In that vein, this dissertation is an endeavor to pave the way for a more equitable and compassionate future in prenatal testing, where inclusive social infrastructures parallel technological innovation.
■590 ▼aSchool code: 0028.
■650 4▼aSociology
■650 4▼aMedical ethics
■650 4▼aGender studies
■650 4▼aCounseling psychology
■650 4▼aDisability studies
■653 ▼aDisability
■653 ▼aExperts
■653 ▼aGender
■653 ▼aPrenatal testing
■653 ▼aReproduction
■653 ▼aGendered pathology
■690 ▼a0626
■690 ▼a0497
■690 ▼a0733
■690 ▼a0201
■690 ▼a0603
■71020▼aUniversity of California, Berkeley▼bSociology.
■7730 ▼tDissertations Abstracts International▼g86-04B.
■790 ▼a0028
■791 ▼aPh.D.
■792 ▼a2024
■793 ▼aEnglish
■85640▼uhttp://www.riss.kr/pdu/ddodLink.do?id=T17160249▼nKERIS▼z이 자료의 원문은 한국교육학술정보원에서 제공합니다.
