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Patient is to Survivor as Care Partner is to?: Care Partners' Experiences of Transition into Cancer Survivorship
Patient is to Survivor as Care Partner is to?: Care Partners' Experiences of Transition in...
Patient is to Survivor as Care Partner is to?: Care Partners' Experiences of Transition into Cancer Survivorship

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자료유형  
 학위논문 서양
최종처리일시  
20260202102957
ISBN  
9798293831623
DDC  
610.73
저자명  
Kuglin Jones, Ann Renae.
서명/저자  
Patient is to Survivor as Care Partner is to?: Care Partners Experiences of Transition into Cancer Survivorship
발행사항  
[Sl] : The University of Utah, 2025
발행사항  
Ann Arbor : ProQuest Dissertations & Theses, 2025
형태사항  
295 p
주기사항  
Source: Dissertations Abstracts International, Volume: 87-03, Section: B.
주기사항  
Advisor: Ellington, Lee;Cloyes, Kristin Gates.
학위논문주기  
Thesis (D.Phil.)--The University of Utah, 2025.
초록/해제  
요약Caregiving can profoundly impact the self-identity and well-being of cancer survivors. With the increasing number of cancer survivors, understanding the unique challenges confronted by their care partners is crucial. However, the experiences of care partners as they transition into survivorship remain understudied. This study aimed to address this gap by examining the changes in self-identity that care partners experience and by identifying the social support necessary for their well-being.Utilizing an interpretive descriptive methodology and framed by Meleis's transition theory, data were collected from a purposive sample of n = 18 individuals caring for spouses or partners who were currently cancer-free or in-remission. Participants completed two free listing exercises (FLE) and two semi-structured interviews. FLE 1 and 2 data were compared via descriptive statistics for differences in length, positivity/negativity, and emotional content as measured by LIWC, and by gender. Interview data were coded using a hybrid deductive and inductive approach and themes were developed to describe insights into the six dimensions of well-being affecting self-identity, how transitions through survivorship occur, and what types of social support best meets care partner needs.As they transitioned through survivorship, care partners reported great disruption to their emotional and social well-being which corresponded to when they began processing their cancer experience post-treatment. Participants described four signposts of survivorship labeled completion of treatment, delayed reaction, gradual realization leading to acceptance, and transition completion. Participants occupied different loci on the survivorship trajectory including two who described being stuck and unable to move forward. Participants admitted fitting their own composite definition of "survivor" but most rejected the integration into their identity. Care partners, who had their own cancer diagnosis, considered the caregiving experience more difficult. Emotional support was the most predominant type of support needed (55.70%), followed by informational (20.00%), instrumental (10.13%), appraisal (7.34%), and belonging (6.83%). Care partners quietly acknowledged that the cancer experience had impacted them in negative ways but were reticent to voice their own needs in fear of overshadowing their spouse or partner.Findings of this study further the cancer survivorship and caregiving literature and prompt the call to action for including care partners throughout the cancer care continuum.
일반주제명  
Nursing
일반주제명  
Oncology
일반주제명  
Health sciences
키워드  
Cancer survivorship
키워드  
Care partners
키워드  
Caregiving
키워드  
Free listing exercises
키워드  
Self-identity
기타저자  
The University of Utah Nursing
기본자료저록  
Dissertations Abstracts International. 87-03B.
전자적 위치 및 접속  
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MARC

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■1001  ▼aKuglin  Jones,  Ann  Renae.
■24510▼aPatient  is  to  Survivor  as  Care  Partner  is  to?:  Care  Partners'  Experiences  of  Transition  into  Cancer  Survivorship
■260    ▼a[Sl]▼bThe  University  of  Utah▼c2025
■260  1▼aAnn  Arbor▼bProQuest  Dissertations  &  Theses▼c2025
■300    ▼a295  p
■500    ▼aSource:  Dissertations  Abstracts  International,  Volume:  87-03,  Section:  B.
■500    ▼aAdvisor:  Ellington,  Lee;Cloyes,  Kristin  Gates.
■5021  ▼aThesis  (D.Phil.)--The  University  of  Utah,  2025.
■520    ▼aCaregiving  can  profoundly  impact  the  self-identity  and  well-being  of  cancer  survivors.  With  the  increasing  number  of  cancer  survivors,  understanding  the  unique  challenges  confronted  by  their  care  partners  is  crucial.  However,  the  experiences  of  care  partners  as  they  transition  into  survivorship  remain  understudied.  This  study  aimed  to  address  this  gap  by  examining  the  changes  in  self-identity  that  care  partners  experience  and  by  identifying  the  social  support  necessary  for  their  well-being.Utilizing  an  interpretive  descriptive  methodology  and  framed  by  Meleis's  transition  theory,  data  were  collected  from  a  purposive  sample  of  n  =  18  individuals  caring  for  spouses  or  partners  who  were  currently  cancer-free  or  in-remission.  Participants  completed  two  free  listing  exercises  (FLE)  and  two  semi-structured  interviews.  FLE  1  and  2  data  were  compared  via  descriptive  statistics  for  differences  in  length,  positivity/negativity,  and  emotional  content  as  measured  by  LIWC,  and  by  gender.  Interview  data  were  coded  using  a  hybrid  deductive  and  inductive  approach  and  themes  were  developed  to  describe  insights  into  the  six  dimensions  of  well-being  affecting  self-identity,  how  transitions  through  survivorship  occur,  and  what  types  of  social  support  best  meets  care  partner  needs.As  they  transitioned  through  survivorship,  care  partners  reported  great  disruption  to  their  emotional  and  social  well-being  which  corresponded  to  when  they  began  processing  their  cancer  experience  post-treatment.  Participants  described  four  signposts  of  survivorship  labeled  completion  of  treatment,  delayed  reaction,  gradual  realization  leading  to  acceptance,  and  transition  completion.  Participants  occupied  different  loci  on  the  survivorship  trajectory  including  two  who  described  being  stuck  and  unable  to  move  forward.  Participants  admitted  fitting  their  own  composite  definition  of  "survivor"  but  most  rejected  the  integration  into  their  identity.  Care  partners,  who  had  their  own  cancer  diagnosis,  considered  the  caregiving  experience  more  difficult.  Emotional  support  was  the  most  predominant  type  of  support  needed  (55.70%),  followed  by  informational  (20.00%),  instrumental  (10.13%),  appraisal  (7.34%),  and  belonging  (6.83%).  Care  partners  quietly  acknowledged  that  the  cancer  experience  had  impacted  them  in  negative  ways  but  were  reticent  to  voice  their  own  needs  in  fear  of  overshadowing  their  spouse  or  partner.Findings  of  this  study  further  the  cancer  survivorship  and  caregiving  literature  and  prompt  the  call  to  action  for  including  care  partners  throughout  the  cancer  care  continuum.
■590    ▼aSchool  code:  0240.
■650  4▼aNursing
■650  4▼aOncology
■650  4▼aHealth  sciences
■653    ▼aCancer  survivorship
■653    ▼aCare  partners
■653    ▼aCaregiving
■653    ▼aFree  listing  exercises
■653    ▼aSelf-identity
■690    ▼a0569
■690    ▼a0992
■690    ▼a0566
■690    ▼a0769
■71020▼aThe  University  of  Utah▼bNursing.
■7730  ▼tDissertations  Abstracts  International▼g87-03B.
■790    ▼a0240
■791    ▼aD.Phil.
■792    ▼a2025
■793    ▼aEnglish
■85640▼uhttp://www.riss.kr/pdu/ddodLink.do?id=T17356583▼nKERIS▼z이  자료의  원문은  한국교육학술정보원에서  제공합니다.

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