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The Work and Workers of Centering Patients in Quality Improvement Networks
The Work and Workers of Centering Patients in Quality Improvement Networks
The Work and Workers of Centering Patients in Quality Improvement Networks

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자료유형  
 학위논문 서양
최종처리일시  
20260202103643
ISBN  
9798314874332
DDC  
614
저자명  
Brannon, Elliott.
서명/저자  
The Work and Workers of Centering Patients in Quality Improvement Networks
발행사항  
[Sl] : University of Michigan, 2025
발행사항  
Ann Arbor : ProQuest Dissertations & Theses, 2025
형태사항  
147 p
주기사항  
Source: Dissertations Abstracts International, Volume: 86-11, Section: B.
주기사항  
Advisor: Singh, Karandeep;Vinson, Alexandra Hope.
학위논문주기  
Thesis (Ph.D.)--University of Michigan, 2025.
초록/해제  
요약Quality Improvement Networks (QINs) are an emerging type of healthcare organization that operate at the network level and use a Learning Health Systems (LHS) approach: QINs connect health systems over large areas with the goal of improving patient health outcomes by learning from patient data. To do this work, QINs collect patient data, implement quality improvement (QI) initiatives to standardize care, and connect stakeholders to share resources. QINs do not provide direct care, but they do aim to improve patient care. Improving patient care through patient-centered means is the basis for an LHS approach. While methods for centering patients on the level of the health system are well established, on the network level at which QINs operate, they are not. My data comes from ethnographic observation of QINs and aims to identify how people within them understand the patients they seek to serve. The study was conducted over a period of one year during which I observed three QINs in a midwestern state. I attended a variety of QIN meetings including operational meetings, data manager meetings, and QIN conferences. I also conducted over 50 interviews with QIN stakeholders such as physicians, data abstractors, and patient advocates. Based on inductive qualitative analysis, I find that QINs use a combination of data abstraction, direct patient engagement, and a variety of indirect methods to understand patients. Much of this work to understand patients relies on a central, but understudied group of QIN staff: data workers. Data workers complete the foundational work of data abstraction though transcribing clinical data into centralized QIN databases. I find that data workers also conduct data analysis and implement QI initiatives while facing pressures ranging from clinical demands to outsourcing. As data work continues to expand to support LHSs at network-level scales, the multi-faceted world of the data worker that I present suggests that the contributions of these workers are important beyond their named role. Although QINs do not provide patient care, they do engage patient advocates directly to gain insight into their care and feedback on patient educational materials. QINs use a variety of methods to understand patients' health outcomes and experiences. I describe how patient advocates become engaged in QINs, barriers to engagement, and activities of these patients. I also find that patients act as cheerleaders to motivate physicians to continue QI work. As efforts to build LHSs at ever larger scales continue to grow, the experiences I highlight show how patient engagement occurs at the network level. Finally, I describe the activities in which QINs engage to understand patients that do not involve direct patient contact. I find that QINs use indirect means such as data abstraction and analysis to understand patient health outcomes. Additionally, quality improvement-focused work and activities outside of the context of QINs provide invaluable insight into the QINs' understanding of the logistical and emotional aspects of patient experience. As network-level organizations, QINs are situated far from the patients they ultimately serve. They therefore employ many strategies to center patients including data abstraction, direct patient engagement, and various indirect methods of data collection. While centering patients is a core value of the LHS approach, I elucidate the extent to which this value is actually adhered to at the network level as well as the work and workers involved in achieving this.
일반주제명  
Health sciences
일반주제명  
Medicine
키워드  
Quality improvement
키워드  
Learning health systems
키워드  
Patient-centered care
키워드  
Data workers
기타저자  
University of Michigan Hlth Infrastr & Lrng Systs PhD
기본자료저록  
Dissertations Abstracts International. 86-11B.
전자적 위치 및 접속  
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MARC

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■5021  ▼aThesis  (Ph.D.)--University  of  Michigan,  2025.
■520    ▼aQuality  Improvement  Networks  (QINs)  are  an  emerging  type  of  healthcare  organization  that  operate  at  the  network  level  and  use  a  Learning  Health  Systems  (LHS)  approach:  QINs  connect  health  systems  over  large  areas  with  the  goal  of  improving  patient  health  outcomes  by  learning  from  patient  data.  To  do  this  work,  QINs  collect  patient  data,  implement  quality  improvement  (QI)  initiatives  to  standardize  care,  and  connect  stakeholders  to  share  resources.  QINs  do  not  provide  direct  care,  but  they  do  aim  to  improve  patient  care.  Improving  patient  care  through  patient-centered  means  is  the  basis  for  an  LHS  approach.  While  methods  for  centering  patients  on  the  level  of  the  health  system  are  well  established,  on  the  network  level  at  which  QINs  operate,  they  are  not.  My  data  comes  from  ethnographic  observation  of  QINs  and  aims  to  identify  how  people  within  them  understand  the  patients  they  seek  to  serve.  The  study  was  conducted  over  a  period  of  one  year  during  which  I  observed  three  QINs  in  a  midwestern  state.  I  attended  a  variety  of  QIN  meetings  including  operational  meetings,  data  manager  meetings,  and  QIN  conferences.  I  also  conducted  over  50  interviews  with  QIN  stakeholders  such  as  physicians,  data  abstractors,  and  patient  advocates.  Based  on  inductive  qualitative  analysis,  I  find  that  QINs  use  a  combination  of  data  abstraction,  direct  patient  engagement,  and  a  variety  of  indirect  methods  to  understand  patients.  Much  of  this  work  to  understand  patients  relies  on  a  central,  but  understudied  group  of  QIN  staff:  data  workers.  Data  workers  complete  the  foundational  work  of  data  abstraction  though  transcribing  clinical  data  into  centralized  QIN  databases.  I  find  that  data  workers  also  conduct  data  analysis  and  implement  QI  initiatives  while  facing  pressures  ranging  from  clinical  demands  to  outsourcing.  As  data  work  continues  to  expand  to  support  LHSs  at  network-level  scales,  the  multi-faceted  world  of  the  data  worker  that  I  present  suggests  that  the  contributions  of  these  workers  are  important  beyond  their  named  role.  Although  QINs  do  not  provide  patient  care,  they  do  engage  patient  advocates  directly  to  gain  insight  into  their  care  and  feedback  on  patient  educational  materials.  QINs  use  a  variety  of  methods  to  understand  patients'  health  outcomes  and  experiences.  I  describe  how  patient  advocates  become  engaged  in  QINs,  barriers  to  engagement,  and  activities  of  these  patients.  I  also  find  that  patients  act  as  cheerleaders  to  motivate  physicians  to  continue  QI  work.  As  efforts  to  build  LHSs  at  ever  larger  scales  continue  to  grow,  the  experiences  I  highlight  show  how  patient  engagement  occurs  at  the  network  level.  Finally,  I  describe  the  activities  in  which  QINs  engage  to  understand  patients  that  do  not  involve  direct  patient  contact.  I  find  that  QINs  use  indirect  means  such  as  data  abstraction  and  analysis  to  understand  patient  health  outcomes.  Additionally,  quality  improvement-focused  work  and  activities  outside  of  the  context  of  QINs  provide  invaluable  insight  into  the  QINs'  understanding  of  the  logistical  and  emotional  aspects  of  patient  experience.  As  network-level  organizations,  QINs  are  situated  far  from  the  patients  they  ultimately  serve.  They  therefore  employ  many  strategies  to  center  patients  including  data  abstraction,  direct  patient  engagement,  and  various  indirect  methods  of  data  collection.  While  centering  patients  is  a  core  value  of  the  LHS  approach,  I  elucidate  the  extent  to  which  this  value  is  actually  adhered  to  at  the  network  level  as  well  as  the  work  and  workers  involved  in  achieving  this.
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