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The Lived Experience of Siblings of Children with Severe Neurologic Impairment: A Qualitative Study
The Lived Experience of Siblings of Children with Severe Neurologic Impairment: A Qualitative Study
상세정보
- 자료유형
- 학위논문 서양
- 최종처리일시
- 20260202103145
- ISBN
- 9798291559987
- DDC
- 361
- 서명/저자
- The Lived Experience of Siblings of Children with Severe Neurologic Impairment: A Qualitative Study
- 발행사항
- [Sl] : New York University, 2025
- 발행사항
- Ann Arbor : ProQuest Dissertations & Theses, 2025
- 형태사항
- 184 p
- 주기사항
- Source: Dissertations Abstracts International, Volume: 87-02, Section: B.
- 주기사항
- Advisor: Stanhope, Victoria.
- 학위논문주기
- Thesis (Ph.D.)--New York University, 2025.
- 초록/해제
- 요약This qualitative dissertation study examined the lived experience of siblings to children with severe neurologic impairment (SNI), focusing on three aims of focus: the day-to-day lives of siblings, the meaning-making experience of siblings and the communication needs and preferences of siblings. The theoretical model for this study was guided by role theory and meaning making theory. A hermeneutic phenomenology approach was employed, and data was collected via two interviews with each of the twelve siblings who participated. The data was then analyzed using the hermeneutic circle to form a situated narrative of the lived experience. Nineteen themes emerged that were categorized into seven domains: family functioning, community integration, practical implications, emotional expressions, sibling relationships, future impacts and healthcare communication needs. The themes related to day-to-day lives of siblings, the meaning-making experience of siblings and the communication needs and preferences of siblings all influenced each other in a bidirectional manner. Siblings played a significant role in caring for their siblings with SNI and this role impacted their identity formation and meaning making process. As such, they wanted and felt they deserve to be part of medical decision-making for their siblings and their involvement preferences evolved over time. This study illuminated important implications for the care of siblings to children with SNI and clinicians should assess for and consider the emotional and practical challenges that siblings face and work to include them. Future research should explore long-term emotional, developmental relational impact of growing up alongside a sibling with SNI.
- 일반주제명
- Social work
- 일반주제명
- Neurosciences
- 일반주제명
- Pediatrics
- 키워드
- Lived experience
- 키워드
- Meaning making
- 키워드
- Siblings
- 기타저자
- New York University PhD Program
- 기본자료저록
- Dissertations Abstracts International. 87-02B.
- 전자적 위치 및 접속
- 로그인 후 원문을 볼 수 있습니다.
MARC
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■020 ▼a9798291559987
■035 ▼a(MiAaPQ)AAI31995198
■040 ▼aMiAaPQ▼cMiAaPQ
■0820 ▼a361
■1001 ▼aJonas, Danielle Faye.
■24510▼aThe Lived Experience of Siblings of Children with Severe Neurologic Impairment: A Qualitative Study
■260 ▼a[Sl]▼bNew York University▼c2025
■260 1▼aAnn Arbor▼bProQuest Dissertations & Theses▼c2025
■300 ▼a184 p
■500 ▼aSource: Dissertations Abstracts International, Volume: 87-02, Section: B.
■500 ▼aAdvisor: Stanhope, Victoria.
■5021 ▼aThesis (Ph.D.)--New York University, 2025.
■520 ▼aThis qualitative dissertation study examined the lived experience of siblings to children with severe neurologic impairment (SNI), focusing on three aims of focus: the day-to-day lives of siblings, the meaning-making experience of siblings and the communication needs and preferences of siblings. The theoretical model for this study was guided by role theory and meaning making theory. A hermeneutic phenomenology approach was employed, and data was collected via two interviews with each of the twelve siblings who participated. The data was then analyzed using the hermeneutic circle to form a situated narrative of the lived experience. Nineteen themes emerged that were categorized into seven domains: family functioning, community integration, practical implications, emotional expressions, sibling relationships, future impacts and healthcare communication needs. The themes related to day-to-day lives of siblings, the meaning-making experience of siblings and the communication needs and preferences of siblings all influenced each other in a bidirectional manner. Siblings played a significant role in caring for their siblings with SNI and this role impacted their identity formation and meaning making process. As such, they wanted and felt they deserve to be part of medical decision-making for their siblings and their involvement preferences evolved over time. This study illuminated important implications for the care of siblings to children with SNI and clinicians should assess for and consider the emotional and practical challenges that siblings face and work to include them. Future research should explore long-term emotional, developmental relational impact of growing up alongside a sibling with SNI.
■590 ▼aSchool code: 0146.
■650 4▼aSocial work
■650 4▼aNeurosciences
■650 4▼aPediatrics
■653 ▼aLived experience
■653 ▼aMeaning making
■653 ▼aMedical decision making
■653 ▼aPediatric palliative care
■653 ▼aSevere neurologic impairment
■653 ▼aSiblings
■690 ▼a0452
■690 ▼a0767
■690 ▼a0317
■690 ▼a0769
■71020▼aNew York University▼bPh.D. Program.
■7730 ▼tDissertations Abstracts International▼g87-02B.
■790 ▼a0146
■791 ▼aPh.D.
■792 ▼a2025
■793 ▼aEnglish
■85640▼uhttp://www.riss.kr/pdu/ddodLink.do?id=T17357186▼nKERIS▼z이 자료의 원문은 한국교육학술정보원에서 제공합니다.
